Meet Our Kids
This page represents just a small group of amazing, courageous, and brave children whose families have permitted us to share their stories. Every child's descriptions paint a vivid, honest picture of families who have exhausted insurance, funds, and the resources to care for a sick child.
Meet Baby Santiago
Santiago was diagnosed with 22q11.2 deletion syndrome/velocardiofacial syndrome, pharyngeal flap repair, cardiac issues (adenovirus myocarditis, heart failure, aortic root dilation and CVA), tracheostomy and G-tube dependence. Every day he uses an Optiflow Trach Adaptor with O2 at 4 L/min (FIO2 30%) during the day and a Trilogy vent in BIPAP ST mode with rate 12, IPAP 10, EPAP 5, ITime 1.0 seconds with O2 at 1 to 4 L/min at night. His single mother is his full-time caregiver and because of this, has very limited financial resources. Join us in support of Santiago.
Meet Baby Ava
Baby Ava was diagnosed in September of 2020 with chronic recurrent multifocal osteomyelitis. She fights every day against this chronic disease with joint swelling, pain, stiffness, and fatigue. Despite her challenges, Ava is a happy baby girl. We are providing needed assistance to cover her monthly travel and lodging expenses for radiographic studies and infusion treatments. Please join us and help raise funds for Ava today!
Meet Baby Zykeria
At 10 years old, she developed necrotizing enterocolitis which resulted in short gut syndrome. Due to her illness, she is unable to consume enough calories and nutrition by mouth to survive. Zykeria is listed for a small bowel transplant at the Children's Hospital in Pittsburgh. We supported the family's request for financial assistance to cover the hotel costs for Zykeria's appointment at the Children's Hospital in Pittsburgh.
Meet Baby Michael
Michael, "Superman” at only 14 days old was diagnosed with an aggressive and difficult Malignant Brain Cancer. His journey with cancer treatment consisted of two major brain surgeries, six high-dose chemotherapy treatments, and hundreds of needles in his precious little body... Tracheostomy and Ventilator dependence. Even when Michael had bad days... his infectious personality always drew people and nurses towards him...blowing him kisses & smiling... Michael was a warrior! Unfortunately, this year cancer came back again...and on April 21, 2020, at only 11 months old his journey with cancer came to an end.
Meet Baby Ashlynn
At 6-months-old, Baby Ashlynn was diagnosed with semantic overgrowth. She had surgery to remove the tumor and currently on clinical trial medication and suffers from sleepiness, pain, body cramps, vision issues, and always thirsty. Baby Ashlynn, is always happy, full of joy, and an exuberant child whose smile, unfortunately, doesn’t reflect her situation. Help us raise funds for Ashlynn today.
Meet Baby Ayphia
Ayphia is happy, full of joy, and an exuberant child whose smile, unfortunately, doesn’t reflect her situation. Meet Ayphia, a 14 months old with congenital hyperinsulinism /hypoglycemia, feeding difficulty, GERD, and a history of GI Bleeding. Since May 2019, she has been hospitalized and her family has had difficulty maintaining their finances. The CiDrep Sickkids team and supporters were there to help with the care she needs.
Meet Baby Aidyn
Baby Aidyn, an 11-years old with a very complicated medical history, following treatments for a malignant sacrococcygeal teratoma in 2009. His complications include gastroparesis, intestinal dysmotility, neurogenic bladder, and renal tubular dysfunction. He is getting the best care from multiple specialists, however, the on-going out-of-pocket expenses related to Aidyn’s care are putting his family in financial challenges.
Meet Baby Sa'Mara
At 5 months and 10 days old she underwent traumatic cardiac surgery illness, blood emesis, and other medical conditions. Sa' Mara is from a single-parent family, with one source of income, and Mom is utterly overwhelmed financially and has exhausted all funds because of her care. Our team and supporters immediately generate funds for needed care and transportation during her surgeries and recovery.
Meet Baby Nalani
Nalani was diagnosed at age 1 with cerebral palsy and chronic lung disease. She is now 10 years old with a history of ongoing illness and care. The CiDrep Sickkids team and generous donors were able to assist her family with payments for her Pulse Oximeter equipment and care. Unfortunately, Nalani passed due to her illness. Give today to help a child.
Darrell, a 12-years-old, diagnosed with DIPG (a form of Brain cancer). It is highly aggressive and difficult to treat brain tumors found at the base of the brain. Darrell passed away on Friday, March 2, 2019. He no longer suffers from cancer that stole so much from him and his family. His life was a blessing. His memory a treasure, and he was loved beyond words and missed beyond measure. Rest peacefully, Darrell.