Santiago was diagnosed with 22q11.2 deletion syndrome/velocardiofacial syndrome, pharyngeal flap repair, cardiac issues (adenovirus myocarditis, heart failure, aortic root dilation and CVA), tracheostomy and G-tube dependence.
Every day he uses an Optiflow Trach Adaptor with O2 at 4 L/min (FIO2 30%) during the day and a Trilogy vent in BIPAP ST mode with rate 12, IPAP 10, EPAP 5, ITime 1.0 seconds with O2 at 1 to 4 L/min at night. His single mother is his full-time caregiver and because of this, has very limited financial resources.
Help every child get well and confortable…
Santiago needs to enjoy life outside of the confinement of hospital walls, so we have decided to cover the cost of his Trilogy Ventilator which will help him to remain cared for in his own home by his family.
We are asking for your financial support to help fund a year of his ventilator support, which is $10,130.16 annually, this is the reduce indigent rate for his mother, because her income is at or below 200 percent of the Federal Poverty Level (FPL). Please join us in support of Santiago to raise $10,130.16 to cover his annual ventilator equipment cost for this year, 2021.
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